Gene Guilt 3

UPDATE

So I have talked about my guilt and guilty genes before regarding Josh. The two other post were about his ears. He got my childhood propensity for ear infections and rupturing eardrums. After the second surgery (First tonsils, tubes and adenoids – Second a procedure to close up his two ruptured eardrums) we were talking to our ENT about his headaches. We had been blaming them on allergies. But the allergy meds weren’t reducing them. I don’t have allergies, so I really didn’t blame myself for that, but of course it just hurt knowing my child was in pain. The ENT didn’t think this was sinus/allergy related issue so he had us schedule a full vision screen for today. I don’t think he has vision issues, the kid sees everything. I actually hope he got my vision. It was always better than 20/20 growing up, and even now with a slight decline, its 20/20. I do have slight astigmatism, but I think that is sinus related. I have spent the last several winters with chronic sinus issues and my vision is better in the summer than winter. OK so back to Josh and the headaches.   If it is not vision I am worried, or rather terrified.  The least of my concern is I have passed on my propensity for headaches – sinus, tension, and migraines.  Of course, if it is that, I will probably feel guilty about it. Intellectually I know that is silly. You get what you get, and he got a lot of good from me as well. But if it is not vision, or just some natural propensity for sinus, tensions, and migraine headaches, that brings out my real fear.  A fear I have a hard time even thinking about, no less writing and talking about. I have mentioned it to Melissa, and I finally mentioned it to the ENT who is an old family friend. If you have been reading me long enough you know my mom and maternal grandfather died of aneurysms. My MRI was perfectly clear, but that doesn’t mean I am not carrying a gene for it. Thinking about this scares the bloody hell out of me. So if his vision is clear, our next step is an MRI. The potential for a need for an MRI, has been in the back of my head ever since he first started complaining about the headaches. If it is not allergies and not a vision issue, I have to admit I am scared out of my mind. Irrational, probably, but fears aren’t always based on the rational parts of our minds. So that’s where we are at.

Update – OK, Josh’s eyes checked out fine. Melissa thinks I am totally overreacting about the whole MRI, or rather MRA thing. The eye doctor told her even with the family history, it is significantly unlikely to be an aneurysm. I, while do pride myself on my rationalism, still can’t shake the fear that it is more than just headaches. So we will talk to our pediatrician and go from there.

Follow Friday #11 Stimeyland

Do you like rodents? OK, well skip those posts.  How about extremely talented writers that blog about life and the challenges and beautiful moments of raising a neurologically diverse family.  Meet Stimey of Stimeyland.com AKA Jean. One of my favorite things about visiting her site (which I do as often as I can) is her prominent saying, right under her picture. “Stimey believes rodents are funny, autism may be different than you think, and that if you have a choice between laughing and crying, you should always try to laugh—although sometimes you may have to do both.” I couldn’t agree more (well not so sure about the rodent thing) and I think about this often, especially when challenged. I will let you know more about her and her site through her about page, copied below.

“About Stimey

by Stimey on March 2, 2007

Jean WinegardnerStimey is mom to Sam, born October 2001; Jack, born May 2003, and Quinn, born May 2005. She is married to Alex, who is an attorney. Stimey is a stay-at-home mom among various other part-time endeavors and jobs, including learning about parenting her autistic child (Jack). She officially joined Jack on the spectrum when she was diagnosed with Asperger’s in early 2012.

Stimey also founded and runs AutMont, a website dedicated to autism-related events, information, and community in Montgomery County, Maryland. AutMont is also on Twitter and Facebook.

Stimey enjoys reading, writing, videography, zombies, Bob Dylan, and most things pop culture. She also likes small, amusing rodents.

Stimey’s work has been published in the following anthologies:

BlogHer'12 Voices of the Year ebook Thinking Person's Guide to Autism Easy to Love but Hard to Raise From the Heart


Email Stimey at: stimeyland at gmail.com or follow her on twitter:http://www.twitter.com/Stimey. In addition to Stimeyland and AutMont, Jean writes Autism Unexpected, a column at the Washington Times Communities. She is listed on Radical Parenting’s 50 Best Mom Blogs list.

Jean’s guest posts have been featured in many places around the internet, including Momicillin, Loser Moms, Diets in Review, and Magneto Bold Too. She has been the featured Woman of the Week two times on A Parent in Silver Spring for her work with AutMont and for the at-home Camp Stimey she runs with her kids each summer. Her writing is featured in several books, including the Thinking Person’s Guide to Autism, Easy to Love but Hard to Raise, the Write for Charity anthology and Big Daddy’s Tales from the Lighter Side of Raising a Kid with Autism. She is regularly profiled online, including for the Parenting Connection, Momz Share, Laundry for Six’s Motivational Momma series, and Blogher.com.

Jean is available to speak on social media and autism. She is also available as a freelance writer. Please email stimeyland at gmail.com for details.

Feel free to tell her to get an offline life. Or to give her a book deal.”

If your not reading http://www.stimeyland.com, you should be!

I guess play dates lead to mixed dancing?

Ok so here is a bit of crazy. Josh has been asking Melissa for some play dates with a couple of his friends from school. Melissa tells Josh she will talk to the parents today to try and set something up. So one of them tells Melissa that they are to busy right now but if that changes, she’ll let her know. But at school Josh tells this girl that his mom is going to try and setup a play date for them. So the girl responds – I’m not aloud to have play dates with boys. Did I mention they are in kindergarten?  Now as someone who has always had more girl friends than guy friends, this blew my mind. And it’s not like he is at some ultra religious school. It’s public school. Did I mention it’s kindergarten?

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